The Matilda Blog
Supporting you in understanding endometriosis, navigating surgical care and speaking up for what your body needs.
From Lived Experience to the World Stage: How Co-Design is Transforming Endometriosis Surgery Support
We gratefully acknowledge the support of the Future Health Research and Innovation (FHRI) Fund, provided by the Western Australian Government Department of Health, and the Market Access Grant Scheme grant from the Department of Jobs, Tourism, Science and Innovation (now the Department of Energy and Economic Diversification). Their contributions helped us showcase our co-designed endometriosis surgery support program on the global stage at the World Congress on Endometriosis 2025.
Dating with Endometriosis: What I Told My Partner from the Start
Dating with endometriosis is a layered experience. It’s not just the nerves or the usual butterflies- it’s also the quiet calculations going on in the background. Will I be okay going out tonight? Should I mention the pain? What if I need to cancel at the last minute?
Why Language Matters in Endometriosis and Pelvic Pain care.
The words we use in endometriosis care can either build trust or cause harm. In this blog, clinician Jo shares how subtle shifts in language can help avoid medical gaslighting, validate lived experience, and foster safer, more compassionate care for people with endometriosis.
World Congress on Endometriosis 2025 – Day Two Highlights from Sydney
Day Two of the World Congress on Endometriosis 2025 kicked off with a packed morning at the Matilda Health booth. We were thrilled to welcome a steady flow of gynaecologists, allied health professionals, researchers, and people with lived experience—all curious about how our digital platform is reshaping surgery preparation and recovery for people with endometriosis.
World Endometriosis Congress 2025 – Day One Highlights from Sydney
Day One of the World Congress on Endometriosis 2025 (WCE 2025) kicked off in Sydney, Australia, bringing together a global community of researchers, clinicians, advocates, and innovators passionate about improving care for those living with endometriosis.
The Matilda team was on the ground from the start—having rich conversations, collaborating on research, and showcasing how digital innovation and lived experience can reshape endometriosis surgery support.
What to Ask at the Endometriosis World Congress (Even If You're Not a Clinician).
A gentle guide for patients, advocates, and non-researchers attending medical conferences. Your voice matters and you belong.