If you live with endometriosis or persistent pelvic pain, you probably already know that pain doesn’t follow a neat, predictable schedule. Some days are manageable. Others are overwhelming. And many days fall somewhere in between.

Recovery from endometriosis surgery is about more than wound healing. It’s a delicate process of physical, emotional, and hormonal adjustment- especially in the first few weeks.

We gratefully acknowledge the support of the Future Health Research and Innovation (FHRI) Fund, provided by the Western Australian Government Department of Health, and the Market Access Grant Scheme grant from the Department of Jobs, Tourism, Science and Innovation (now the Department of Energy and Economic Diversification). Their contributions helped us showcase our co-designed endometriosis surgery support program on the global stage at the World Congress on Endometriosis 2025.

Living with endometriosis can feel isolating. That’s why we created the Matilda Circle- a supportive, validating community where you’re seen, heard, and never alone.

I wanted to be the friend who said yes to every invite. The one who was always up for a spontaneous catch up or a last-minute trip. The one who could bounce back quickly, no matter what her body was going through.

Instead, I was constantly navigating a body I didn’t fully understand, symptoms I didn’t yet have language for, and a health system that often made me feel invisible. So, I learnt to perform—to act ‘normal’.

It’s one of the most common- yet least talked about- challenges of living with endometriosis: bowel symptoms.

Many people with endometriosis experience bloating, constipation, diarrhoea, pain with bowel movements, or a sensation of incomplete emptying. These symptoms can occur even without endometriosis directly affecting the bowel, because of the condition’s links with inflammation, nerve sensitisation, and pelvic floor dysfunction.

One of the most common questions I hear from patients is:
"Can I do Pilates if I have endometriosis?"

And the answer is: there is absolutely no rule against it.

Travelling with endo? It’s absolutely possible. Yes, you can still live your best life- whether it’s cocktails by the beach or hot chocolates in the mountains. The key? A bit of prep, some handy tricks, and listening to your body every step of the way.

Dating with endometriosis is a layered experience. It’s not just the nerves or the usual butterflies- it’s also the quiet calculations going on in the background. Will I be okay going out tonight? Should I mention the pain? What if I need to cancel at the last minute?

Research confirms what many patients have known for years: endometriosis is associated with significantly higher rates of insomnia, poor sleep quality, and daytime fatigue compared to those without the condition.

The words we use in endometriosis care can either build trust or cause harm. In this blog, clinician Jo shares how subtle shifts in language can help avoid medical gaslighting, validate lived experience, and foster safer, more compassionate care for people with endometriosis.

On May 22nd in Sydney, Matilda Health and Gedeon Richter hosted a powerful evening fireside chat during the World Congress on Endometriosis 2025. In front of a room of clinicians, researchers, and advocates, Anna and Alyssa shared their deeply personal journeys with pelvic pain and endometriosis—stories of dismissal, resilience, and the long road to validation. What unfolded was more than just a conversation—it was a reminder of why lived experience must be at the centre of care, research, and innovation.

Pelvic Health Physiotherapy focuses on the assessment and treatment of the muscles, nerves, and tissues in and around the pelvis — while also considering how the whole body works together. This blog explores how Pelvic Health Physiotherapy supports muscle function before and after endometriosis surgery.

Day Two of the World Congress on Endometriosis 2025 kicked off with a packed morning at the Matilda Health booth. We were thrilled to welcome a steady flow of gynaecologists, allied health professionals, researchers, and people with lived experience—all curious about how our digital platform is reshaping surgery preparation and recovery for people with endometriosis.

Day One of the World Congress on Endometriosis 2025 (WCE 2025) kicked off in Sydney, Australia, bringing together a global community of researchers, clinicians, advocates, and innovators passionate about improving care for those living with endometriosis.

The Matilda team was on the ground from the start—having rich conversations, collaborating on research, and showcasing how digital innovation and lived experience can reshape endometriosis surgery support.

Surgery for endometriosis can be a big moment—not just physically, but emotionally too. For loved ones, it can be hard to know what to say or do. How do you show up meaningfully without overstepping? How can you support them before, during, and after surgery in a way that feels genuinely helpful?

This guide is for you.

Living with endo means constantly figuring out what helps and what doesn’t—and believe me, I’ve tried a lot. These five game-changers are my little lifelines: the things I carry, sip, slather, and swear by to get me through the toughest days.

A gentle guide for patients, advocates, and non-researchers attending medical conferences. Your voice matters and you belong.

Endometriosis surgery recovery is often messy, emotional, and full of surprises—even the third time around, each recovery brings its own unique challenges. Here’s an honest take on what it’s really like beyond the pamphlets and polite checklists, and how a support app like Matilda could have made the process a bit easier.

As a primary school sports teacher, my job requires me to be on the move — running games, demonstrating drills, and keeping up with a group of energetic kids every day. It’s a role I love deeply, but like many with endometriosis, I’ve had to learn how to navigate the physical demands of my job alongside the often unpredictable symptoms of a chronic condition.