World Congress on Endometriosis 2025 – Day Two Highlights from Sydney
A Morning of Co-Design and Connection at the Matilda Booth
Day Two of the World Congress on Endometriosis 2025 kicked off with a packed morning at the Matilda Health booth. We were thrilled to welcome a steady flow of gynaecologists, allied health professionals, researchers, and people with lived experience—all curious about how our digital platform is reshaping surgery preparation and recovery for people with endometriosis.
One of the most meaningful parts of the day was our Live Co-Design Wall. This interactive space invited everyone—clinicians and community alike—to respond to one big question:
💬 What would gold-standard endometriosis care look like before, during, and after surgery—in an ideal world?
The responses were powerful. Some spoke of emotional support and trauma-informed care. Others shared the need for better discharge planning, fewer delays, and personalised digital support.
Clinician Interviews: Future Visions for Endometriosis Care
Throughout the day, we also interviewed clinicians on the ground—asking them what excited them most about WCE 2025 and their hopes for the future of endometriosis care.
Recurring themes included:
The need for interdisciplinary care pathways
Integrating patient voice and co-design into clinical models
Using digital tools to enhance follow-up care and health literacy
Increasing equity of access to care across rural and regional areas
Their insights will shape the evolution of Matilda’s endometriosis surgery support program, ensuring it's deeply informed by both clinical wisdom and lived experience.
Poster Spotlight: Co-Design in Action with Anna from Matilda
Another proud moment for the Matilda team on Day Two was seeing our Community Lead, Anna, present her research poster on the co-design process behind Matilda’s surgery support program.
Anna’s poster explored how our team worked with people with lived experience—not just for them—to develop a digital health solution that truly reflects what patients want and need. It was an example of how co-design can bridge the gap between evidence-based guidelines and real-world care.
Clinicians, researchers, and attendees with lived experience responded with genuine enthusiasm, sharing how impactful it was to see a model of care being shaped by those who use it. The poster reinforced a key theme of the Congress: care should be created with people, not just delivered to them.
“It’s not just about what the guidelines recommend,” Anna shared.
“It’s about translating knowledge in a way that’s actually meaningful for the person going through it.”
This feedback affirmed our belief that co-design isn’t just good practice—it’s essential.
Fireside Reflections: Lived Experience in the Spotlight
By far, the most talked-about moment of the day was the evening fireside chat, co-hosted by Matilda Health and our generous partners at Gedeon Richter. Set against the backdrop of Darling Harbour, this intimate event brought the lived experience of endometriosis and pelvic pain into focus—with heartfelt, unforgettable stories from Anna and Alyssa, two key members of the Matilda team.
As drinks flowed and the sun set, the room quieted to listen.
Anna and Alyssa shared their diagnosis journeys with courage and honesty—highlighting moments of invalidation, uncertainty, hope, and strength. From being dismissed by clinicians, to navigating years of unexplained pain, to eventually becoming advocates and researchers, their stories struck a chord with everyone in the room.
“There weren’t many dry eyes by the end,” one guest shared.
“This was the highlight of the Congress—it reminded me why I do what I do.”
These lived experiences painted a clear picture: gaps still exist, and co-designed, person-centred care is the path forward.
Visit Us at Booth #4 – Help Shape the Future of Endometriosis Surgery Care
If you’re at WCE 2025 in Sydney, come by Booth #4 to:
Learn about Matilda Health’s digital endometriosis surgery support program
Add your voice to our Live Co-Design Wall
Connect with clinicians, researchers, and advocates redefining care
Final Thought
Day Two reminded us that while data and discovery are vital, the real transformation happens when science meets story.