On May 22nd in Sydney, Matilda Health and Gedeon Richter hosted a powerful evening fireside chat during the World Congress on Endometriosis 2025. In front of a room of clinicians, researchers, and advocates, Anna and Alyssa shared their deeply personal journeys with pelvic pain and endometriosis—stories of dismissal, resilience, and the long road to validation. What unfolded was more than just a conversation—it was a reminder of why lived experience must be at the centre of care, research, and innovation.

Endometriosis surgery recovery is often messy, emotional, and full of surprises—even the third time around, each recovery brings its own unique challenges. Here’s an honest take on what it’s really like beyond the pamphlets and polite checklists, and how a support app like Matilda could have made the process a bit easier.

As a primary school sports teacher, my job requires me to be on the move — running games, demonstrating drills, and keeping up with a group of energetic kids every day. It’s a role I love deeply, but like many with endometriosis, I’ve had to learn how to navigate the physical demands of my job alongside the often unpredictable symptoms of a chronic condition.

Written by Matilda endometriosis lived-experience co-designer, Emma (and first time marathon runner!), this blog explores endometriosis and running... is it bad? Should it be avoided (many health professionals often advise against it)? Any tips for running with endometriosis?

As a whole body disease, Endometriosis can impact every facet of person’s life, including their ability to attend work and be proxductive whilst there. This blog focuses on tips that can help you navigate the workplace as someone with endometriosis.