The Matilda Blog
Supporting you in understanding endometriosis, navigating surgical care and speaking up for what your body needs.
From Lived Experience to the World Stage: How Co-Design is Transforming Endometriosis Surgery Support
We gratefully acknowledge the support of the Future Health Research and Innovation (FHRI) Fund, provided by the Western Australian Government Department of Health, and the Market Access Grant Scheme grant from the Department of Jobs, Tourism, Science and Innovation (now the Department of Energy and Economic Diversification). Their contributions helped us showcase our co-designed endometriosis surgery support program on the global stage at the World Congress on Endometriosis 2025.
Why Lived Experience Matters in Endometriosis Care: Stories That Moved the World Congress in Sydney
On May 22nd in Sydney, Matilda Health and Gedeon Richter hosted a powerful evening fireside chat during the World Congress on Endometriosis 2025. In front of a room of clinicians, researchers, and advocates, Anna and Alyssa shared their deeply personal journeys with pelvic pain and endometriosis—stories of dismissal, resilience, and the long road to validation. What unfolded was more than just a conversation—it was a reminder of why lived experience must be at the centre of care, research, and innovation.
World Congress on Endometriosis 2025 – Day Two Highlights from Sydney
Day Two of the World Congress on Endometriosis 2025 kicked off with a packed morning at the Matilda Health booth. We were thrilled to welcome a steady flow of gynaecologists, allied health professionals, researchers, and people with lived experience—all curious about how our digital platform is reshaping surgery preparation and recovery for people with endometriosis.
World Endometriosis Congress 2025 – Day One Highlights from Sydney
Day One of the World Congress on Endometriosis 2025 (WCE 2025) kicked off in Sydney, Australia, bringing together a global community of researchers, clinicians, advocates, and innovators passionate about improving care for those living with endometriosis.
The Matilda team was on the ground from the start—having rich conversations, collaborating on research, and showcasing how digital innovation and lived experience can reshape endometriosis surgery support.
What to Ask at the Endometriosis World Congress (Even If You're Not a Clinician).
A gentle guide for patients, advocates, and non-researchers attending medical conferences. Your voice matters and you belong.