The Matilda Blog

Supporting you in understanding endometriosis, navigating surgical care and speaking up for what your body needs.

Why Lived Experience Matters in Endometriosis Care: Stories That Moved the World Congress in Sydney

On May 22nd in Sydney, Matilda Health and Gedeon Richter hosted a powerful evening fireside chat during the World Congress on Endometriosis 2025. In front of a room of clinicians, researchers, and advocates, Anna and Alyssa shared their deeply personal journeys with pelvic pain and endometriosis—stories of dismissal, resilience, and the long road to validation. What unfolded was more than just a conversation—it was a reminder of why lived experience must be at the centre of care, research, and innovation.

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